Embedding a community-led approach to increase diversity in research: a mixed method evaluation of the North Central London Research Engagement Network
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Authors
Amber Newbigging-Lister
Lizzie Stimson
Shae Eccleston
Geoffrey Ocen
Trevor Blackman
Anne Buffardi
Contact
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Issue Date
06-May-26
Type
Conference Abstract
Language
Keywords
Working with people and communities
Alternative Title
Abstract
Background
The profile of research participants often does not reflect those who are most at risk or affected by different health conditions. This representation gap has knock on effects for the design and delivery of health services and contributes to disparities in health outcomes. The cross-sector North Central London Research Engagement Network (REN) sought to address this gap, with a focus on Black, Gypsy, Roma, Traveller, Alevi, Turkish, and Bulgarian communities. This evaluation documented how REN was implemented in practice and assessed interim outcomes, which directly informed programme adaptation.
Methods
From October 2023-July 2025, we conducted 22 interviews, two surveys (n=18), observations of 19 meetings/events, 4 online focus group discussions, and a review of 67 documents and monitoring data. Emerging findings were presented at workshops 9 and 18 months after REN was established to shape the action plan for the following year.
Results
The REN model is characterised by its: dual network development and implementation aims; geographic, thematic and population subgroup focus; rapid scale-up enabled by existing relationships with community-based organisations and established research networks; and it's community-led, co-learning approach. All stakeholder groups highlighted the perceived value of the jointly developed approach that invests in relationships and links research to broader health and wellbeing. REN increased researcher awareness of community assets and needs, and participant awareness and uptake of health checks. It facilitated co-development of research projects and influenced the Integrated Care System's research approach and strategies. Trust in REN was built, however trust of health and research institutions remained low and there was little evidence of increased participation in research studies.
Conclusion
Building on existing relationships can enable upstream engagement in research processes among underrepresented groups, with positive spillover effects for health service uptake. Funding and evaluation timelines must account for the longer time frames needed to build trust and increase downstream research participation.