It's just getting the word out there: Self-disclosure by people with young-onset dementia
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Authors
Kohl, Gianna
Koh, Wei Qi
Scior, Katrina
Charlesworth, Georgina
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Issue Date
30/09/2024
Type
Journal article
Language
Keywords
Specialist and Integrated
Alternative Title
Abstract
Background
Sharing a dementia diagnosis with others is a prerequisite to accessing important support for social, cognitive, and physical activity. However, due to the stigma associated with dementia, individuals may be hesitant to disclose their diagnosis. Despite the importance of this issue, there is limited research on personal experiences with sharing one's diagnosis. This study explored how people with young-onset dementia disclose their diagnosis to other people, also known as self-disclosure, and how time affects self-disclosure.
Methods
We conducted an exploratory qualitative study, using semi-structured interviews with nine people with young-onset dementia living in the United Kingdom (UK). A narrative approach to analysis was applied, focusing on understanding the core narratives, themes, tone, and imagery of each participant's narratives as well as providing a cross-case analysis to identify patterns across narratives.
Results
Participants openly disclosed their diagnosis, accepting it as an illness that did not define their identity. Several were met with stigmatizing reactions, which affected their levels of openness, and a lack of understanding, which caused shrinking social networks for some. Peer support groups, advocacy activities, and strategic concealment were used to support self-disclosure.
Conclusion
This study provides a holistic understanding of people with young-onset dementia's experiences with self-disclosure and how these evolved. Policies should prioritize the creation of dementia-friendly communities, while recommendations for practice include integrating empowerment interventions and peer support into post-diagnostic support. These efforts will support individuals in their self-disclosure journey, promote social engagement and reduce stigma.
Description
Citation
PLoS One. 2024 Sep 30;19(9):e0310983. doi: 10.1371/journal.pone.0310983. PMID: 39348358; PMCID: PMC11441687.
Publisher
License
Journal
PLoS ONE
Volume
19
Issue
9