Coaching Newly Diagnosed People with Multiple Sclerosis

Abstract

Introduction Rapid intervention to facilitate secondary prevention is key for people with multiple sclerosis (pwMS). However, the regular pathway for diagnosis and management in the UK lacks urgency, which may adversely impact on pwMS' adjustment to their new diagnosis and their decision making. Evidence suggests emotional support of pwMS during this early phase may be of particular importance for rapid disease modifying treatment (DMT) and beneficial lifestyle changes. Aims To report outcomes of a workshop focussing on sustainable coaching for newly diagnosed pwMS. Methods A two-day workshop, taking place in February 2024, will be led by a team experienced in coaching pwMS early after diagnosis. Modules will include (i) early interactions between healthcare professionals (HCPs) and pwMS, (ii) dealing with resistance, (iii) emotional care pathway development, (iv) goal setting, (v) role of quality of life trustees, and (vi) measuring success. Results Approximately 35 HCPs will participate in this first of its kind workshop, which will inform similar future training events. Conclusion The urgency with which pwMS should enter a holistic care setting, including early DMT, produces new challenges for HCPs and the NHS. Efficient coaching may enable pwMS to rapidly adapt to MS thereby minimising its detrimental effects on their quality of life.